Before the age of 2, Christina Acosta was diagnosed with a rare disorder called Neurofibromatosis type 1 (NF1). Now at age 50, it has continued to impact her life in an unpleasant way.
NF1, which causes benign tumors on the body, has affected the left side of Acosta’s face the most. She has lived with the facial deformity since she was a toddler.
— Inside Edition (@InsideEdition) January 27, 2018
Other visible tumors didn’t start developing all over her body until age 20. The genetic condition has left her blind in one eye and deaf in one ear.
The tumors have become so agonizing that Acosta has resorted to working from home as a telemarketer.
“I get really bad headaches, my body is in pain all the time and I’m always in and out of the hospital,” she told Inside Edition.
Public shaming has also taken a toll on Acosta’s self-confidence. As a child, she experienced a lot of bullying, and that same misfortune has followed her to this day.
Even her 8-year-old daughter is being bullied at school because of it. “I know people don’t mean to because they don’t understand, but it hurts,” the single mom said.
There is no cure for Acosta’s condition, but she created a GoFundMe to help raise $30,000 toward reshaping her face.
She’s hoping it will help improve her appearance for her daughter’s sake.
“I know I’ll never look perfect, but I just want to look presentable,” she said. “I want my condition to at least be less visible.”
Acosta explained on her donation page how NF1, which softens the bones and tissues, requires a special kind of procedure.
“Because the Doctor is a specialist and is out of the Network my insurance will not cover the cost for this surgery,” she wrote.
Her fundraiser has only accumulated $700 within 10 months. In hopes that her dream will come true, Acosta also plans to one day remove the rest of the tumors on her body through a procedure called electrodessication.
Ultimately, Acosta said she wants to look “normal” to end all the taunting and teasing, and honestly, that’s the part that hurts the most.
People in her shoes shouldn’t feel the need to change in order to fit in with society.
However, if this life-changing treatment will make a difference health-wise, then Acosta deserves our support 100 percent. Help to bring awareness by sharing this story!
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